Good morning all, sorry I have been AWOL. I wasn't going to moan, but thought it might be better to explain. No-one wants to read the ramblings of a moaner, hence my absence!
I am struggling just now and and have retreated somewhat from life. It is blooming exhausting trying to be positive and upbeat and pretend I am fine. I look so well, that I'm sure people think I am a fraud, as do people on GN.! 😁
It is easier to disengage because I have become a very grumpy old and intolerant woman. 😉
My RA appointment was quite disappointing. My consultant agreed I am quite unwell, displaying all the symptoms of a major flare up. For the first time in years, there were no xrays, nor bloods done. It was obvious things were not good, so no point in wasting anyone's time.
The good news us I will start yet another a new treatment in six weeks time, but unfortunately my recent shingles vax and a second one due in two weeks make it too risky to start it earlier. Neither can I have steroids to reduce the inflammation and the pain, because my immunocompromised status already leaves me at risk of serious infection. Apparently catching a cold could have serious consequences.
There is no possibility of increased pain relief, because any more will leave it impossible to function and I do want some sort of life..
So I must grin and bear it for the next six weeks or seven weeks. A daunting task.
--I nearly wrote bare, now that would not be a pretty sight!!
The news got more depressing as the consultation progressed. Apparently the numbness in my foot is caused by nerve damage and my Carpal Tunnel has reared it's ugly head again.
I was also unaware that at my last consultation, my cardiologist had discharged me, because there is no treatment which will improve things, all that can be done is being done. The main reason for my continuing breathlessness is not my heart, but worsening COPD, so someone else will need to address that.
I won't bore you with the rest of it, there was more depressing news to be delivered..
However, my consultant complimented me on changing to an automatic car, which I should have done years ago and was delighted that I was determined not to give in.
Mr MD is golfing, so I have an empty, which I am looking forward too.
I hope your cardiology goes well Mick, remember to tell your clinicians about your breathlessness. A change of meds may help.
Thank you for your good wishes, especially one special GN friend, who checks up on me.
GMATTIE, glad to see you posting!
Enjoy your day and make the best of every opportunity.
I will go back to ready your posts now